Last week was my bottom.

I realized it as I pulled the Poang from my office into my bedroom in a last ditch effort to tolerate CPAP. As I said goodnight to my wife I had a glimpse of my future and I did not like it.

I lasted about 20 minutes in the chair before my legs got numb and the absurdity of it all became too much.

The thing is, I have been sleeping better, far from perfect, but much better than the year before. Last years depression and overall despair has lifted and even though I know most nights are not great, they are better than they used to be.

I have lost about 15 pounds since the heart of winter when once again the scale read close to 300. Most of my friends find it hard to believe I actually get that heavy. They know I am overweight, joke me about it from time to time, but 300 is a huge number even for 6-2. It is embarrassing to be that heavy especially when you stand in front of a church crowd week in week out playing guitar.

I am happy to report that I am under 280 now according to my scale which is what I will be using until my 3 month checkup. My doctor wants to see me hit 240, but I am shooting for 220 as my personal goal and will see how things look and feel for me there. If I just maintain my caloric levels of 1790 per day, that is a 2 pound loss per week. At that rate I am looking at 7 months to reach my goal. Since I am adding the C25K program as well as biking to my diet, it will probably take less time than that. I tend to lose very rapidly anyway and once I get going 10 pounds a month should be easy which will bring me in right at 240 in 3 months.

I feel really good about this and the timing of it in my life. I have the tools I need, a “diet” I can live with, a fantastic running program, and 100% support from the home team. Now that Emily is a little older, I have the time and energy to devote to me. I didn’t want to miss a moment with her as a baby as I did with the other 2. I probably went a little overboard, but I knew this was probably the last time I would be experiencing this. I loved the late nights and early morning and sleeplessness. It took its toll on me, but I wouldn’t trade it for anything.

So it is time to get up and go. Consider this my accountability partner and promise to love myself into the person I want to be.

Time for bed, I have 2 miles to run and walk in the morning.

 

Written on March 22nd, 2011 , Health, Sleep Apnea

What have you been up to lately?

I have been busy.

We have all been busy.

Removing floors.

Installing floors.

Listening to Taylor Swift.

Dancing to Taylor Swift.

Removing Carpets

Finding dust.

Painting walls.

Installing more floors.

Drinking coffee.

Dismantling and cleaning vacum cleaners.

Creating DIY room air cleaners.

Finishing rooms.

Finding new homes for old and new pets.

All in an effort to remove allergins.

So we can sleep.

Written on January 11th, 2011 , Health, Sleep Apnea

It has been a tough weekend and start to the week here at the Rohfam.

Emily had been complaining all last week with ear pain that turned out to be a non ear infection that turned into a cough that turned into an ear infection that turned into vomiting that turned into a trip to the Hospital that turned into a couple nights of forcing medication from the top and bottom and breathing treatments and drinking with a syringe that turned into a baby feeling better today.
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Here is Emily the Elf after her 3 hour nap today.

IFRAME Embed for Youtube

In other news Julie has bronchitis but her ear infection is cleared up. She is on antibiotics should be o the mend soon. Elizabeth has some sort of lung thing going on, probably from Mom or Emily. Alex is indestructible and I am still not sleeping.

I visited the Ear Nose and Throat doctor today and have a list of problems to work on. At one point as she was forcing a camera down my nose to look at the back of my mouth I felt like a little kid that just wanted my Mommy. It was a strange sensation and I figured I finally reached my “bottom” as the doctor explained that my tonsils seal off my airway, I have a deviated septum, enlarged nasal turbinates, allergies, signs of acid reflux, and need to lose weight.

I felt a little overwhelmed at that moment and with tears in my eyes I told her I have been trying.

I feel so violated in all of this. From the sleep study to mask fittings to doctor visits to dental visits to more doctor visits to Nasonex prescriptions to Lunestra prescriptions to ENT referrals to allergy testing to Gastroenterologist referrals to Asterpro prescriptions to Prilosec prescriptions to EpiPens, to tonsil surgery to who knows what is to come.

So at this point my life is definitely out of my control and aside from the moment of despair this morning with my new doctor, I have been rolling with the punches.

As long as they don’t come any faster or harder, I should be able to make it through all the remaining rounds.

I won’t win by knockout, but I will win by decision.

Written on December 1st, 2010 , Everyday Life, Health, Sleep Apnea

The crescendo of last nights CPAP experience was not only removing the mask from my face but pulling the power plug from the back of the machine to make sure whomever was trying to suffocate me couldn’t.

It started out well enough, the usual tossing to get comfortable exasperated by the straps and hose, but soon I was asleep. Ever since my visit to the sleep specialist last week, the new pressure setting has been easier to manage but last night was different. I woke up shortly after falling asleep to the sound of air escaping from my mouth. It is kind of humorous how my brain will try and make sense of the sensation, usually changing my dreams to involve breathing or telling someone to shush……..

Apparently the air had been leaking for a while because my mouth was extremely dry. The only thing I can do when this happens in to take some two inch medical tape and literally seal my mouth shut. The goal is to eliminate any ability to breath in or out of my mouth. Good times. To experience this for yourself, cover your mouth with your hand and stick your head out the car window while driving and breath through your nose. The panic and low level lizard brain response to cutting off my secondary airway takes every bit of my higher brain function to override.

The Amygdala or lizard brain will always win the battle for self preservation and last night was no exception. Not sure if I can blame everything on the little guy, but it seems whenever my mouth is tapped shut I have this irresistible urge to cough, my nose gets plugged, I can’t catch my breath, and I have an irresistible urge to eat flies. Just kidding about the flies. Ever tried coughing with your mouth taped shut? Good times. After the panic of the coughing spell passed I drifted off to sleep until waking abruptly to the realization that I was suffocating.

There are many ways to die and I have considered most of them over the 41 years on the planet. There is one thing I know for certain about life, it will find a way to kill you, but suffocating has to be the worst. There is simply too much time to become fully aware of what is happening to your body for my taste. I don’t like suffocating and my lizard brain is really afraid of it because it convinces me every night that I am going to die with tape on my mouth and forced air down my nose.

I don’t understand how it could arrive at the conclusion the outcome of CPAP pressure and tape is harmfull. There is no evolutionary path of failure in my family tree for a mouth taped shut while breathing pressurized air. In any case, I doubt there could ever be  a negative natural selection outcome in the first place since suffocation is generally lethal but that is a topic for another day. Whatever the reason for the conclusion that tape and pressure equals death matters very little at the end of the night when faced with the looming reality of it. The fact is whatever my lizard brain has figured out how to do to make me remove the mask so as not to prove its theory is working.

The most troubling thing about it all is that not only has the fear response been activated but my imagination is also along for the ride. I was convinced last night that in order to preserve my life I needed to unplug the machine. Not from the wall, but from the back of the unit so that the people trying to “kill me” could not figure out how to reactivate it once I feel asleep again. I was certain of this, as certain as I am that I am late for lunch.

A therapist once told me I should write horror books about my experiences in the middle of the night.

I no longer visit him.

Perhaps he is trying to kill me…..

Written on September 23rd, 2010 , Health, Sleep Apnea

The last few weeks have been cruddy. Really cruddy on just about every level. I feel like I have wandered into a cow pasture. A pasture that was just occupied by a herd with explosive dysentery. No matter where I step, I seem to be getting poo all over me.

I am hesitant to state what the final straw was because just about the time I think that was it, a whole new bale of hay falls in my lap. 

What is with the farm metaphors?

I am ready for this chapter to be over. It has helped walking through it sleep deprived, I can chalk it up to one long nightmare, but even those end in the morning.

Is it morning yet?

Oh wait, I think I actually need to sleep to wake up.

Written on July 19th, 2010 , Everyday Life, Health, Sleep Apnea
The Rohr Family

Blessed Beyond Measure